Cancer-related electronic support groups as navigation-aids: overcoming geographic barriers

Till, James E. (2004) Cancer-related electronic support groups as navigation-aids: overcoming geographic barriers. Journal of Cancer Integrative Medicine, 2 (1). pp. 21-24.

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Abstract

Cancer-related electronic support groups (ESGs) may be regarded as a complement to face-to-face groups when the latter are available, and as an alternative when they are not. Advantages over face-to-face groups include an absence of barriers imposed by geographic location, opportunities for anonymity that permit sensitive issues to be discussed, and opportunities to find peers online. ESGs can be especially valuable as navigation aids for those trying to find a way through the healthcare system and as a guide to the cancer journey. Outcome indicators that could be used to evaluate the quality of ESGs as navigation aids need to be developed and tested. Conceptual models for the navigator role, such as the Facilitating Navigator Model, are appropriate for ESGs designed specifically for research purposes. A Shared or Tacit Model may be more appropriate for unmoderated ESGs. Both conceptual models raise issues in Internet research ethics that need to be addressed.

EPrint Type:Article
Additional Information:Metadata for the version of this article that's been harvested by the Internet Archive.
Uncontrolled Keywords:Electronic support groups, cancer, mailing lists, navigation aids, Internet research ethics
Subjects:Neoplasms > Neoplasms by Site > Breast Neoplasms
Social Sciences > Quality of Life
Information Science > Communication
ID Code:37
Deposited By:Prof. James E. Till
Deposited On:03 June 2005

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